Sunday, September 27, 2009
Wednesday, September 16, 2009
All of a sudden he vomits on my shoulder. I put him down and he gags and does it again. I kneel down and try to talk to him but he is just gagging. Then I realize he is very pale and does not look like he is breathing. I see that his lips are turning blue so I run upstairs and take him inside. In the house, Cheryl confirms my fears that something is terribly wrong and calls 911 immediately. I lay Matthew down on his side in case he throws up again and I start talking to the 911 operator. Cheryl has Emma sent to another room to play with her daughter Macy so that she is not involved in what is going on. By this time Matthew is starting to breathe but they are very light very shallow breaths. His eyes seem to roll back every once in a while as he is trying to catch his breath. Somehow I've managed not to freak out completely and am trying to soothe Matthew who is slowing getting back to his normal self. I've done a great job of staying calm until I continue talking to the 911 operator. I know that they are supposed to ask you the same questions several different times and different ways to make sure they have all the facts straight, but after the 5th time she asks me "Is he breathing?" the tears start rolling down my cheeks. Within minutes there are paramedics, police officers and firemen in Cheryl's living room. Matthew is still lying on the floor. He is breathing normal but he isn't getting up and he keeps blinking long and hard. Finally, after the policeman tries to ask Matthew questions he gets up and clings to me. Then it’s like nothing ever happened. He is responsive and breathing just fine. Just to be sure all is well we take a ride in the ambulance to the ER to get checked out.
Matthew is breathing 100% now and uses his full lung capacity to scream and cry the whole way to the hospital because he doesn't want to be buckled into his seat. He gets his vitals checked and gets yet another catscan to add to his collection. We hang out at the hospital for a few more hours to find his catscan is normal but his neurologist wants him back on his seizure medication. This is news that I am not thrilled about but as I see Matthew running around the ER with a big smile on his face I know that I need to focus on the silver lining. So much worse could have happened that day. What if he had his episode while I was driving or before I had arrived? What if it was more severe and he had gotten hurt? We were blessed that everyone responded so quickly and that in the end he was safe and we were going home.
Today he had an appointment with the neurologist. He met with Kathie Teta at Child Neurology Associates near Scottish Right. We are told that the best thing would be to keep Matthew on medication until he is seizure free for 2 years. I know this is what the initial plan was supposed to be. But his previous doctor felt that since his progress had been so good and his EEGs showed only some spikes and no full blown seizures that we could try him off the meds. It breaks my heart to know he will be on this medicine for the next two years, but once again.....the silver lining. It is only twice a day. It is only for two years. It will help prevent/control any future seizures. It could be so much worse.
So next week he will have another EEG and then after that another MRI to make sure nothing else is going on that the doctors need to know. I have been trying hard to focus on the silver lining of these gloomy clouds. It’s difficult to do but it's a lot easier when I see Matthew's big smile!
Matthew in the Child Neurology waiting room.
Friday, September 11, 2009
As requested by several people, I have posted a video of Emma singing the song she sang at the Talent Show the other weekend. Sorry the picture isn't very good. I am not the best at using our camera. Now imagine her singing this in a cute dress with a piano and a microphone. Isn't she sweet!
Here are the words in case you want to sing along:
"I'm so glad when Daddy comes home, glad as I can be
Clap my hands and shout for joy and climb up on his knee
Put my arms around his neck, squeeze him tight like this
Pat his cheeks and give him what? ...... A great big kiss!"
On Labor Day, Ben took down the crib we've had set up for 4.5 years now. First for Emma, then for Matthew. It was kind of sad seeing it get put away. I plan to re-decorate his room since it seems so empty now without the crib. Maybe some fun sheets and some pictures on the wall.
Ben set up the simple twin bed that he had used when he was a boy and thru his teenage years. It is actually part of a set of bunk beds but we only set up the single bed. Matthew seemed indifferent about the change. He wasn't excited about it, but he wasn't afraid either. The first time he slept in it, he didn't cry but he did wake up sooner than usual. Overall, I have been extremely impressed at how well he has transitioned into the new bed. This entire week he has not once gotten out of his bed in order to escape from his room. He has not woken up in the middle of the night to sneak into our bed. He just lies in his bed with his best bud Blue like he did in his crib. When we tell him its time to go to sleep he shuts his eyes super tight to show that he is ready. He is such a good boy!
Emma seems more excited than Matthew. She helped me to put the sheets on his bed and asked to read to him in his bed the other night. My babies are growing so fast.
Growing up so fast
Sunday, September 6, 2009
My sweet and innocent biter.